Information on my Conditions
Functional Neurological Disorder
Functional Neurological Disorder (FND) is a disruption in the functioning of the nervous system, affecting the transmission of signals between the brain and body. It is considered a condition that lies directly at the intersection of neurology and psychiatry that historically has failed to gain the interest of researchers and clinicians.
Triggered by physical or psychological trauma, FND manifests in diverse symptoms, including physical, sensory, and cognitive impairments, profoundly impacting quality of life.In FND, the normal pathways your brain uses to move, feel, speak, walk, and/or think, are disrupted. This promotes symptoms such as paralysis (not being able to move part of the body), functional seizures, extra movements such as tremor or jerks, problems with memory, etc.These are real neurological symptoms, yet they can not be explained by an organic disease.
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Distinguishing Between Organic and Functional Disease
An organic disease is one in which there is a measurable change to tissues, organs, or body systems. The cause and disease pathway have largely been established as the diagnosis can be confirmed with specific tests like blood work and imaging.
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A functional disease is one in which there are abnormal symptoms or changes in function but with no measurable changes in tissues. The cause and disease pathway are often less understood as there are no available tests to confirm. It is typical for patients to go through endless tests and imaging that typically turn up negative. A diagnosis is based largely on diagnostic criteria. This lack of understanding leads to a great deal of frustration for patients as it can take years to even receive a proper diagnosis.
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Software vs. Hardware Analogy
The hardware vs. software analogy can be used to explain FND. Imagine that your brain is a computer which contains hardware (the physical components) and software (the operating system) The hardware and software communicate and work together to help function. With FND, it’s like one of the programs with the software isn’t working properly (for example, the program for how to walk) or in some cases like the computer is crashing (like with functional seizures). The hardware, or structure of the brain, is normal (an example of a hardware problem of the brain would be something like a stroke or MS). This software issue causes the brain/body to glitch, malfunction and shutdown, just as a computer might with a software problem.
FND Symptoms
For some, symptoms can be permanent, while for others, symptoms come and go in waves referred to as flare ups or episodes. Symptoms may often mimic a wide range of other neurological conditions such as MS or Parkinson’s disease.
Symptoms include, but are not limited to:
Gait and balance problems
Involuntary movements
Cognitive changes
Paralysis and weakness
Functional seizures
Sensory changes
Chronic pain
Bladder and bowel changes
Speech problems
Visual changes
Headaches and migraines
Sleep disturbances
Swallowing difficulties
FND Treatment
Treatment for FND will depend on particular symptoms.
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Therapies
Physical, occupational, and/or speech therapy
Cognitive behavioural therapy (CBT) or psychotherapy
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Medication
“Sedative medications in general quite often reduce symptoms from FND (e.g. benzodiazepines, baclofen, opiates), but the downside of these drugs are often very significant. This is particularly the case for pain, a very common accompaniment to FND. Many FND patients are on huge quantities of sedative medications like oral morphine, tramadol, codeine. These drugs do usually dull the pain to some extent, but they rarely reduce it significantly and in the long term the doses of the drugs have to escalate to get the same effect.” (fndhope.org)
CHIARI
Chiari 1 Malformation
(kee-AH-ree mal-for-MAY-shun)
A Chiari malformation is a congenital condition in which the brain tissue of the cerebellum extends into the spinal canal creating a blockage. This causes an obstruction in CSF flow (cerebro spinal fluid that surrounds the brain and spinal cord) which puts pressure on both the brain and spine causing a variety of serious neurological symptoms. This occurs when the skull is misshapen or smaller than typical.

Image - www.conquerchiari.org
Symptoms
Bad headaches are the classic symptom of Chiari malformation which typically occur after coughing, sneezing, or straining. Other symptoms include:
Neck pain
Weakness
Paralysis
Gait and balance issues
Poor coordination
Numbness and tingling
Dizziness
Difficulty swallowing
Speech changes, such as hoarseness
Nystagmus
Diagnosis
Imaging tests such as a CT scan or MRI are used to diagnose Chiari malformations.
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Treatment
Treatment for Chiari depends on your condition. If you are asymptomatic, their health care may be monitored through physical exams and MRI tests.
Chiari malformations that cause severe symptoms are usually treated through decompression surgery. The goal is to prevent further damage to the central nervous system by relieving pressure and restoring CSF flow. Surgery may or may not stabilize or relieve symptoms.
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